Harley Ann

Harley's Story...

On September 12, 2012 I went to the doctors for a follow up after having high blood pressure for 7 days. We spent 5 of those 7 days in and out of Labor and Delivery monitoring contractions and Harley's progress to only find out she stopped growing in the womb around 28 weeks and I had developed pre eclampsia at only 32 weeks. Later that afternoon I was admitted to Holy Redeemer with the intent to monitor until birth. The doctors prepared us for the worst while we hoped for the best.

At 8:15 p.m. Harley arrived following and emergency c-section. She was born screaming (roaring) which was the best sound we could've asked to hear for at this time. This became very hard as her parents to handle and watch her at only 2 pounds 13 ounces putting up the biggest fight of her life to survive but Harley was a fighter and was thriving. We planned to come home only 4 weeks later, but Harley then developed cellulitis. Our world was crumbling down when she was not able to breathe on her own. There were so many nurses and doctors all around us and things started to become chaotic and blurry while I held Harley on my chest feeling her little heart beat and listening to her try and cry while the doctors prepared to take her and save her. Harley was intubated for 3 days and back on her feeding tubes which felt like we took a giant step backwards. During the night on the third day one of the nurses notified us to come over quickly and we prepared for the worst but were surprised with a very alert baby. Harley pulled her breathing tube out on her own and was breathing all on her own. This was a surprise that brought on the happy tears. Less than a week later we were able to bring our healthy and happy 4.5 pound baby girl home.

Harley is a very happy and healthy 4 year old princess who loves to draw, sing and dance. We could not have asked for a greater gift in life but for our beautiful princess. If not for the NICU nurses, I don't know how we would've made it through this. From letting me cry with them, to just sitting with us and just saying all the positive things about Harley's progress, talking to me all hours of the night when I called to find out how Harley was doing, to finding a room for us to stay for a few nights so I did not have to leave her side, to finding the cutest outfits for her to wear; but most of all being our heroes and allowing us to bring home our beautiful baby girl.

                                                                                                                                                             -Stephanie Cullinan & Joe Mangini,
                                                                                                                                                                                       Superhero Parents